Malachi Moves

Here you can see where Ki's incision was made from his TOF (Tetralogy of Fallot) repair. The stitches are covered with little strips of tape. It's a little black and blue at the top.


Ki was moved to another room in the PCTU today, so we would be out of the way of new and sicker patients. We saw several new patients come in and out over the past three days at his old station. We're set up here with the laptop on his bed while we watch a re-run of The Office (the Willy Wonka episode).

It's Day Three and we expect Malachi to be in the PCTU (Pediatric Cardio-Thoracic Intensive Care Unit) for two more days still. He needs to do some sprinting which means he'll breathe on his own for short periods of time about three separate times in the course of one day before he can come off the ventilator and breathe totally on his own. He still needs to be weaned from a few fluids and meds and needs to have some other tubes removed. He's on course now, the only slow down being due to an arrhythmia on Day One which has since been corrected.

Then he'll be moved to Moderate Care. I'm not sure how long he'll be there for, maybe three or four days. I'm looking forward to holding him, feeding him, hearing his coos and giggling together again. I'm looking forward to going outside with him - he adores being outside. Until then, he is receiving great care and love and prayers and is doing so so well.

So much happens everyday with his little body, it's hard to explain, much less understand. I take notes everyday in a notebook with more details that may be of interest to him later in life. I take pictures everyday to track his progress and so Malachi will one day be able to see what being at Mott Children's Hospital has been like.

With love from the bottom of our three hearts,
KC, Amy and Malachi